After some chasing, I finally got a copy of the clinic letter from my March 8th appointment, and subsequently got a copy of the MRI report – although the latter makes no sense to me. I’ve read MRI reports from Southampton and there’s typically been a summary or something that is understandable to a relatively lay person, but not so with the one from Queen Square.
At first the clinic letter scared the crap out of me. I already knew the risks of further surgery, but seeing it written as plainly as “… surgery with unpredictable outcome and uncertain risk profile with a definite risk of causing complete paralysis.” was still a shock. I think it’s the fact this is the first time “complete” paralysis has been mentioned rather than waist or chest down. C then read it and pointed out that the registrar might have simply been trying to make it clear to the GP that surgery is far from the best course of action, thus emphasising the need for me to be referred to the pain team. The letter goes on to say “At this point in time, I would strongly recommend referring him to the local pain team for their expert opinion and further management.” Hopefully then, when I see the GP next week, they will finally accept that as a course of action.
Meanwhile, the increased dose of pregabalin seemed to be making a difference for a while. Virtually no burning sensation in my foot and ankle, and the acute pain somewhat reduced. However, in recent days the pain has increased again and I’ve had the odd spell when the burning has returned, although not to the same level as previously. I can’t think that the last few days have been atypical to have caused this, so my worry is that I’m getting used to the meds already. Something to discuss with the GP next week.