Long overdue update

The duloxetine seems to have been providing some additional relief to the pain in my back, with the acute attacks being a bit less severe. However, I noticed fairly quickly after reducing the pregabalin dose to 250mg that I started getting the burning sensation back in my foot. I increased one of the doses to 300mg again and it settled. Wondering if I’d got myself to a manageable state, last week I dropped back down again, but that really doesn’t seem to be working. Ive had some occasional spells in recent weeks where the pain has been particularly bad for a prolonged period, and that has been more noticeable as this last week has gone on, with it being quite intolerable at times since Thursday evening. Back to 300mg twice a day I think when I redo my meds for the week later.

I’ve also noticed increasing problem with my gait recently. It’s one of the reasons I’ve tried to cut down on the pregabalin, as change of gait is one of the more common side effects. However, whilst the gait is infuriating at times, I’d rather keep the pain under control.

I’ve had confirmation of a referral to neuro rehab, but there is a potential 13 week wait. I’ve also had a form to fill in from the pain team about my level of pain, general well-being, likelihood of committing suicide(!) – apparently all the sorts of things they need to know to decide which part of the pain team I should see. Apparently I will get an appointment within 11 weeks of them getting the form back, so there is a chance I will have seen someone by the time I go back to Queen Square in October – 13 months after they told me I should be seen by the pain team.

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